Dear {{Constituent Name}},
On September 9–10th, AMDAPP leadership was honored to join the Michael J. Fox Foundation’s Parkinson’s Policy Forum in Washington, D.C. Over two powerful days, we met with Senators and Representatives from our home states to advocate for sustained funding for Parkinson’s and Atypical Parkinson’s Disease research and care. Standing shoulder to shoulder with other healthcare providers, patients, care partners, and researchers sent a clear message: every voice counts and together, our voices are impossible to ignore!
One of the most moving moments came from former U.S. Representative Jennifer Wexton of Virginia, diagnosed with PSP in 2023. Using an augmentative and alternative communication (AAC) device with an AI-generated model of her own voice, she delivered a profound address that left the room silent and inspired. Rep. Wexton was instrumental in passing the Dr. Emmanuel Bilirakis and Honorable Jennifer Wexton National Plan to End Parkinson’s Act that was signed into law on July 2, 2024. This law, now known as the National Parkinson’s Project. Despite this milestone, progress has been slowed by NIH budget cuts. Forum attendees emphasized the urgency of fully standing up the National Parkinson’s Project and called on Congress to hold the EPA accountable for protecting people from paraquat.
This invitation placed AMDAPP® at the table for national advocacy, alongside other leading organizations including the Parkinson’s Foundation, PMD Alliance, APDA, and Lewy Body Dementia Association, all working collectively to accelerate progress for people living with Parkinson’s disease.
We felt your presence with us in every meeting and hallway conversation. AMDAPP made meaningful connections across the Parkinson’s community, and we’re carrying that momentum forward! Please consider getting involved, see below for how to guide.
All the best!
Erin |
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Erin Zinn, MSN, APRN, ANP-BC, CMRD
Deputy Director, AMDAPP® |
ADVOCACY: HOW TO GET INVOLVED |
Your outreach matters!
Let’s keep our voices strong, united, and impossible to ignore!
💬 Here’s how you can help today:
Please email or call your Senators and Representatives to:
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Support robust funding to implement the National Parkinson’s Project.
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Ensure strong EPA action to protect communities from paraquat exposure.
There are many ways you can Advocate for Parkinson's Research, the MJFF created an advocacy tool kit to help break down tangible ways to advocate on behalf of our patients. There are even tips and templates that can be used in the tool kit.
Want to stay up to date on the latest news in Parkinson's Policy? Consider joining the MJFF Policy Network. You will receive timely opportunities to engage when our voices are most needed, along with breaking news updates, training, resources, and more.
Not sure who your Senators and Representatives are?
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Celebrating Advanced Practice Providers
This week and every week we celebrate the dedication and impact of APPs. We extend our gratitude for the critical role you play across healthcare, improving outcomes and strengthening patient care.
A special recognition goes to the Movement Disorder APPs, whose expertise and commitment are transforming the landscape of the field. Thank you for the difference you make every day.
Happy National APP Week! |
AMDAPP® CONFERENCE 2026-
Register Here Today! |
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Are you attending MDS in Hawaii?
If you haven't signed up but plan to attend, register today! Spaces are limited!
We would love to have you join us!
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Upcoming
Educational Opportunities
- Hyperkinetic Movement Disorder Webinar
- Live Webinar hosted by AMDAPP
- October 23rd, 7p EST/4p PST
- No cost to attend
- Learn updates in assessment and management of hyperkinetic movement disorders! This will cover both TD & HD.
- More info & Registration
- AMDAPP is hosting APP Day at AAN Fall Conference
- Thursday November 6th
- Caesar's Palace, Las Vegas
- If you plan to attend, come check us out!
- Virtual CME Series on Movement Disorders
- NeuroCME2025
- Hosted by Patient Mind Inc.
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AMDAPP-U: Designed for busy clinicians
Free, flexible, on-demand CME |
🌟 Nominate a Colleague for Recognition!
Do you know someone who goes above and beyond in supporting the field of movement disorders or the work of APPs? We’d love to highlight them!
Whether it’s an APP, physician, social worker, PT, OT, speech therapist—or any dedicated professional—you can help us celebrate their impact.
📩 To nominate someone, please email us with the following details:
Name
Title
Practice or organization
A brief description of why you’d like to recognize them
Send submissions to hello@amdapp.org
Let’s give these incredible professionals the spotlight they deserve! |
Interested in getting involved?
Email us at hello@amdapp.org and let us know! |
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Join AMDAPP as a Founders Circle Member! Your donation supports our mission to enhance care for individuals with Parkinson’s and movement disorders by providing support, resources and education to APPs. As a Foundational Member, you'll play a key role in advancing education, mentorship, and advocacy in the field. Become a part of this impactful movement by donating today!
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